Friday, November 21, 2008

Specialists, specialists, specialists

Well, we keep trying to figure out Kendra's health woes. She has fainted at school several times now on top of everything else. We went to the rhuematologist yesterday and it looks like they are going to diagnose her with POTS postural orthostatic tykardia syndrome. Don't know if I got the spellings anywhere right. What that means is that her autonomic nervous system is not functioning well and is not sending the right messages to her body. Her circulatory system is thus dysregulated. They have tied in alot of her symptoms to this including her stomach pain which has otherwise been elusive to diagnosis.

There are a few more tests they want to run, pulmonary functioning, EKG, lab work, stress tests and probably some more that they will dream up. We see the cardiologist next week. From what I can discern if she does have POTS there is a good chance that she can rehab from it and learn to live with the disease. It is a better diagnosis than some of the scary ones they were tossing around like Lupus or rheumatoid arthritis.

We still have the neurologist and endocrinologist to see later. In the midst of this my insurance decides to be a pain. Even though I have been on the plan since the end of July and we transferred from another plan, they are now trying to pull the pre-existing condition crap. I hate dealing with insurance messes.

The one bright piece of news is that Kendra will finally get her braces off after almost 2 years. She can't wait.

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